Local Services

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The Leicestershire and Rutland MND Multi-disciplinary Team Clinic

Since 2007 people with MND in Leicester, Leicestershire and Rutland have greatly benefited from a unique service which arose from a project jointly funded by the MND Association and the Department of Health. This award winning multi-disciplinary team (MDT) model was developed by working across health and social care to identify a defined pathway of care for people with MND - from diagnosis to end of life and bereavement support. This involved working in partnership with the University Hospitals of Leicester, Community Health services, specialist services such as the Home Enteral Nutrition Service, Speech and Language Therapy, Social Services, LOROS and the MND Association. 

The work undertaken by the initial project team was sponsored by MNDA and the Leicestershire and Rutland Branch and resulted in the introduction of the Leicestershire & Rutland MND Multi-disciplinary Team Clinic. This has proved to be of great benefit to those being treated for MND in our area and the Branch is grateful for the commitment of all the professionals involved (consultants, dieticians, therapists, MND specialist nurses, LOROS staff etc). Specially trained Branch Association Visitors (AVs ) are also involved in the clinics by welcoming those attending and supporting the work of the team where appropriate. The model of care developed and now sustained in Leicestershire has been widely recognised as good practice that could be rolled out to other areas. It was awarded the BUPA Foundation Clinical Excellence Award in 2009 for work that demonstrates an improved clinical outcome for patients.

 The MND multi disciplinary team meets at LOROS fortnightly to discuss the needs of patients as in a ‘virtual ward round’ which is followed by the MND clinic where patients can see the MND specialist nurse, a consultant in palliative care and other therapists as appropriate. This enables patients to be seen in one place which saves travel time, provides support, improves communication and provides a ‘one stop’ appointment for patients. MND Association Visitors (AVs) take part in the MDT discussion and welcome patients and carers to the clinic. A patient led support group now runs alongside the clinic once a month. This service is co-ordinated by the MND Specialist Nurse who acts as key worker and supports patients and carers from diagnosis to end of life. 

In 2015, the MND Association and the Leicestershire and Rutland branch agreed to provide funding for a 2 year project to employ additional practitioner posts to support the work of the current MND multi-disciplinary team. This has enabled a full time additional nurse to be employed to undertake some of the more routine tasks carried out by the MND specialist nurse and to develop the skills and knowledge to become part of the specialist team in the future. In addition another nurse has been seconded to work for two days a week to develop specialist skills and give further support to the team.

 

See the document "Multi-disciplinary Team Clinic" for more information.

Local Services for People Affected by Motor Neurone Disease (MND)

Medical, social and other services for people with MND in Leicester, Leicestershire and Rutland are provided by a number of local agencies eg. NHS, District Councils, LOROS. Full details are provided in the document "Local Services for people affected by MND".

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