About The Branch

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The Leicestershire and Rutland Branch of the Motor Neurone Disease Association was established in 1986 by a small group of people who wanted to improve local support for families affected by the disease, increase awareness of their needs within the community and raise money to fund research in the hope of finding a cure for MND.

From its earliest days the Branch has attracted the loyal support of many local people and organisations and, through their dedication and commitment, the Branch has gone from strength to strength. The quality of welfare support provided by the Branch's team of trained volunteer visitors has not only earned the respect of those working within the local health and social care professions but has been recognised nationally as an example of good practice.

Our aim is to make a difference to people affected by MND

Thanks to the enthusiastic fundraising efforts of many local groups and individuals, over £ 500,000 has been raised since the Branch was formed. Money raised locally is used by the Branch to support people living with MND in our area. The branch also helps to provide training for professional staff and volunteers in the region to disseminate best practice and raise awareness of the particular needs of people with MND. Each year, a proportion of the remaining income is made available to the Association to support national care, research and awareness strategies.

The Leicestershire and Rutland Branch of the MND Association continues the fight to maintain and improve the levels of care for those who are living with the disease as well as helping to fund vital research programmes.

Below are listed some of the ways we try to make a difference for people affected by MND in Leicestershire and Rutland.

Equipment and Financial Support

The MND Association and local Branch will help with providing equipment where necessary. Requests for support are always dealt with discreetly and sympathetically.

Association Visitors

Our trained volunteer visitors offer caring, informed support to people with MND and their families.

They work as part of a local team visiting people with MND and their carers at home or keep in touch by telephone or email.

They provide an invaluable link for people living with MND, keeping them in touch with the MND Association and proactively signposting them to various other sources of help.

They also offer support at the MND clinics held at LOROS, the Leicestershire and Rutland hospice. The development of the multi-disciplinary support and palliative care project means that we and the professional team are all working together to support people with MND

Friends and Family Meetings

Regular informal meetings are held for all those currently caring for or involved with people living with MND. They provide an opportunity like-minded folk, MND clinical specialist nurses, dieticians, speech and language therapists and branch members to meet for a chat and friendly support.

Social meetings

The Branch holds regular informal open meetings at LOROS and other venues throughout the year to support those affected by MND. Friends and branch supporters are also welcome!  

Fundraising events

We organise events and offer support to local fundraisers.

 fundraising

Awareness raising talks

Branch members are available to give informative talks about MND and the work of the Branch and MND Association.

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