Our branch is run entirely by volunteers so we are always delighted to hear from people who would like to join our team and lend us valuable support.

How you can make a difference

Volunteers play an important role in the MND Association. They help to ensure that people with MND and their families receive the support and services they need.

Volunteers in the Leicestershire and Rutland Branch work together in many different ways to provide support to people affected by MND, work on the branch committee, raise awareness of MND in the community and organise local fundraising events

We can always use more volunteers!

You don't need to have had personal experience of MND to be a branch volunteer - just the desire to help. Our volunteers come from all walks of life, bringing with them a variety of skills and experiences.

As a Branch volunteer, you choose how much time and commitment you want to give. Some volunteering roles involve attending meetings but others can be done entirely from home. Some of our work requires a more regular commitment while some roles are more flexible or occasional. So, whatever your skills or availability, there is likely to be a role suitable for you. Where appropriate, training is available and, of course, the Association will refund any out of pocket expenses you incur whilst providing this support.

Volunteers support the branch in many different ways, for example by :-

  • organising or supporting a fund-raising event
  • helping out at meetings e.g. serving refreshments, "meeting and greeting"
  • raising awareness in the community
  • helping with publicity and mailings
  • selling MNDA Christmas cards
  • making things to sell at fundraising events
  • becoming an Association Visitor or a Friend of the Branch ( see below )
  • joining the committee

If you are interested in helping the Branch as a volunteer, do contact the Branch Chairman or Secretary to discuss how you, too, can make a difference.

Become a Friend of the Branch

We know that there are many of you who would like to support the branch but aren’t able to take on a committee role or anything which requires a more regular commitment such as being an Association Visitor. However, there is a way that you might be able to help -  by signing up to become a Friend of the Branch.

There are times when we need to find people who are available to lend a hand at a local event or function so we are gradually building up a list of branch supporters who are willing to help out occasionally in this way.

 Here are a few examples of the sort of things we sometimes need help with:-

  • welcoming guests or serving refreshments at open meetings such as the AGM or Strawberry Tea

  • lending a hand at a fundraising event

  • joining the rota for a bucket collection at a local venue
  • selling MNDA Christmas cards  or supporting the Cards for Good Causes shop rota

  • publicising events or selling tickets

  • acquiring raffle prizes

To become a Friend of the Branch, all you need to do is contact the Branch Secretary (see below) with your contact details eg. name, telephone number and e-mail address (if available). You could also let us know of any particular interests or restrictions on your availability or activities as well as any useful facilities or resources that you can access for the Branch. We can then use the contact list to let all our Friends know of any events or activities where we need some support and you can then tell us if you’re able to help.

(Please be assured that we will not pass on your details to anyone else.)

"Friends of the Branch" Co-ordinator -  Yvonne Minifie  (Branch Secretary) 

 Email   This e-mail address is being protected from spambots. You need JavaScript enabled to view it         Telephone 01509 233826


Association Visitors

Association visitors (AV's) offer support and friendship to people affected by MND by making regular telephone contact and visiting people either in their homes or in residential care. They provide a valuable link to the MND Association and other local sources of help. AV's need to be good listeners, able to work with tact and sensitivity and to understand the need for confidentiality. They are caring, reliable people able to both practical and emotional support.

Association Visitors in the Leicestershire and Rutland Branch work as part of a team that includes the Regional Care Development Adviser (RCDA), and other local Visitors. They receive a free four-day training course which has won national recognition and all out of pocket expenses are paid by the Branch. There are regular support meetings with the team, the RCDA and other professionals.

Because of the success of our involvement in the multi-disciplinary clinics at LOROS, we are now making contact with more and more people with MND in Leicestershire and Rutland. Our small but dedicated team of AV's feels very privileged to be working alongside the professionals, offering both practical and emotional support to people living with MND and their families. As well as the excellent training and support for volunteers provided by the Association, we also have a great deal of local expertise and experience to call on within the Branch. Leicestershire and Rutland is a big "patch" so we are always glad to welcome new volunteers to the team.

If you would like to know more about becoming an Association Visitor, please contact our AV Coordinator Jenny Holmes Shuttlewood for an informal chat about the role. ( See Contact Us page) 


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