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JANE'S AMAZING CURRY NIGHT FOR MNDA AND LOROS

What a wonderful evening we had at the Curry Evening organised by MND Specialist Nurse Jane Glover to mark her retirement from LOROS! Over 150 friends, relatives and colleagues came along to pay tribute to Jane and enjoyed a superb "all-you-can-eat" buffet meal at the Chef and Spice restaurant in Leicester.  It was a very special night which raised an amazing £2,670 to be shared by MNDA and LOROS. We are very grateful to Jane for all she has done to support people with MND both professionally and as a fundraiser and wish her a very happy retirement. 

 

 RACHAEL AND PAUL'S COFFEE MORNING! 

Saturday 21st October saw a very early start in the Johnson household as we hosted our first ever coffee morning. In previous years Ruth had run numerous successful events but it seemed like it was all the regulars being hounded for cash again, so a change of venue was in order.

In the weeks before Griffendale Printers had been kind enough to advertise us in their publications and we put reminders out to the neighbours. We had 4 HUGE cakes and Yvonne very kindly supplied the MNDA branded cards. I think we were both pleasantly surprised how easy the event was to organise and would encourage anyone else thinking of doing some fundraising to give it a go. Plenty of people turned up for coffee, cake and chat.

What really horrified us in honesty is how many of our neighbours lives had been touched by MND without us even knowing; it was certainly an eye-opener. Despite this the house was filled with unadulterat-ed happiness.

Anyway with the amazing support of friends, family and the Lutterworth community we raised £436 in just 3 hours.


 BIRSTALL LADIES GROUP PRESENT PAUL WITH A MEGA-CHEQUE !  

The Birstall Methodist Ladies Group named our branch as their charity of the year, with events throughout the year, particularly with a coffee morning which was well attended. Their fantastic efforts and commitment raised £ 2,300 for the branch. A great effort by a wonderful team that is greatly appreciated. The picture below shows the ladies at their recent presentation evening when Paul Wilcock was thrilled to received their mega-cheque on behalf of the branch. 

 

MND ASSOCIATION  CHRISTMAS  CARDS

MNDA Christmas cards are now available and will be on sale at the Autumn Coffee Morning and other branch events in the autumn. If you would like cards for yourself or to sell to friends, work colleagues or at an event in your area, please contact Yvonne Minifie on 01509 233826 or at This e-mail address is being protected from spambots. You need JavaScript enabled to view it  .    

CHRISTMAS TREE  FESTIVALS  -  CAN YOU HELP ? 

This year MNDA is the nominated charity at the Burton Overy Christmas Tree Festival which is being held from 10am to 6pm on December 1st, 2nd, 3rd.  This is a very well supported and busy event and Jenny Holmes Shuttlewood is organising a special MNDA tree for the church and a fundraising stall in the village hall. As we will be selling new items only, Jenny would welcome any donations of unwanted gifts etc. as well as offers of help in running the stall for an hour or two during the 3 days of the festival. If you can help in any way, please give her a call on 0116 2883504.(She’s even offering to collect any goods !)

On the same weekend, thanks to Yvonne Minifie, we will also be displaying a tree for MNDA at the Shepshed Rotary Club Christmas Tree Festival  at St Botolphs Church, Shepshed. 

 

2017 WATERMEAD CHALLENGE RAISES £2,000 FOR MNDA!

The Rotary Club of the Wreake Valley, kindly made us one of the beneficiaries to receive funds raised in their Watermead Challenge, This is an annual event with the option of a 3 or 5 mile run around Watermead Park. This year was the biggest ever with over 500 participants. The Club raised £2000 for us and also supported another local charity. The cheque was presented by Julie Trotter and Club President Richard Bowler  to Paul Wilcock and Goff Tearle during the club's AGM  and was very gratefully received. Many thanks for the tremendous effort and support!

 

 

LOCAL CAMPAIGN TO PROTECT NHS  “CONTINUING  HEALTHCARE” BUDGETS

By Alice Fuller, Campaigns Manager (East), MND Association

Crucial services people that people living with MND rely on are under threat in Leicestershire & Rutland – but we’re fighting back. We’ve been voicing our opposition to plans announced at the start of this year to dramatically cut NHS Continuing Healthcare (CHC) in this area. A massive £29 million pounds is being withdrawn, and new rules introduced to limit the amount of care provided in people’s own homes. This will mean heart-breaking battles to keep CHC, and the threat of people being forced into care homes against their wishes.

By using the media and support from local MPs, and working with partners such as the Spinal Injuries Association and Parkinson’s UK, we’ve been successful in getting two of the three clinical commissioning groups (CCGs) responsible to rethink the changes. Disappointingly, East Leicestershire and Rutland CCG seem determined to push ahead with the changes regardless of their devastating impact. Those of you receiving NHS CHC will have received a letter informing you of the proposals.

The fight continues to stop them, but I need your help. 

You can help this local campaign by…

  • Sharing your story of receiving NHS CHC, whether now or in the past, so we can illustrate what a lifeline this support is
  • Contacting your MP to raise your concerns about the changes
  • If you’re on Twitter, sharing posts about the campaign (search for #CHC)

You can support the Association’s wider campaigns by…

  • Becoming the branch’s campaigner! Over a third of the local groups now have a Campaigns Contact – will you be ours?
  • Coming to the annual Parliamentary Reception in Westminster on 17 October. Last year over 100 supporters lobbied 55 MPs about disability benefits. Let us know if you’d like to attend.
  • Taking one-off e-actions at www.mndassociation.org/campaignwithus

 For more information, contact Alice Fuller at This e-mail address is being protected from spambots. You need JavaScript enabled to view it or on 0207 250 8452.

 

NEW MNDA BENEFITS ADVICE SERVICE

Following MNDA’s successful pilot work in our area and the north east, the Association has now established a benefits advice service for people with and affected by MND in England and Wales. The service is provided in partnership with Citizens Advice (Cardiff and Vale) to help users identify the benefits they may be eligible to claim and how best to claim them. It can also deal with more complex benefits issues such as appeals against benefits decisions.The service is available by telephone, e-mail and webchat.

Telephone: 0808 801 0620 (free to call)

E-mail and webchat: www.mndassociation.org/benefitsadvice 

 

LEICESTERSHIRE AND RUTLAND MASONS  CHEQUE PRESENTATION 

In 2017 ,the Leicestershire and Rutland Branch of the Motor Neurone Disease Association was the recipient of one of the many generous Grants presented to local charities from funds raised by members of Leicestershire and Rutland Masonic Lodges. The picture shows the Provincial Grand Master presenting a cheque for £2000 to Branch Chair, Janet McMillan at a ceremony at the Masonic Hall in Leicester.    

    

 BRANCH ANNUAL GENERAL MEETING

We were pleased to welcome members and guests to the MNDA Leicestershire and Rutland Branch Annual General Meeting which was held  at LOROS on 30 March 2017. We are very grateful to the members from the local panel of the charity REMAP who gave us a most interesting presentation about the amazing work they do to help disabled people maintain independence by adapting equipment and creating innovative solutions to problems with mobility and day to day activities.  We were also delighted to welcome representatives from several local groups who have been fundraising for us this year such as the Oadby and Wigston Lions. We also received a couple of very generous cheques so are most grateful to Shepshed Rotary Club who presented us with a cheque for £1000 and the Leicestershire Gilbert and Sullivan Society for their  donation of £456 in addition to the proceeds of a bucket collection we held at their recent production of "Oklahoma!" which raised a further £275 for branch funds.    

HONOURABLE MENTION IN PARLIAMENT

Thanks to South Leicestershire MP Alberto Costa, the branch featured in a parliamentary debate about MND on 20 February, occasioned by the sad death from MNDA of the young political adviser, Gordon Aikman. The Hansard report for that day reads:

 I congratulate the hon.Gentleman (Ian Murray) on bringing this much needed debate to the Floor of the House. Will he join me in paying tribute to local MND associations across the UK for the invaluable support they provide? I know of the excellent work of my local Leicestershire and Rutland Association, having heard at first hand from a constituent and friend, Ruth Morrison about her personal experience. The support that is available is of immense value and I hope the hon.Gentleman will join me in paying tribute to the work of those associations.

 ROLLING BACK THE YEARS

A huge thank you to everyone who came along to make the evening a sell-out!

The tributes from Chris Kinton (Elvis) and Scott Dee (Engelbert) were amazing and the Fantoms got everyone on their feet dancing. The evening was raising funds for MND and Prostaid.

A total of £1200 was split between the 2 charities: £700 for MND and £500 for Prostaid.  

   

JAMES SELLICKS PRESENTS GIANT CHEQUE!

We are very grateful to James Sellicks Estate Agents who kindly raised and donated £ 3182.00 to the branch. Branch member Paul Wilcock is pictured  below receiving this generous donation from James Sellicks at their Leicester branch.

                                                                                                                 

 

STRAWBERRY TEA 

It was great to see so many people at our annual strawberry tea in July! Everyone enjoyed not only strawberries but delicious fruit cake from a local celebrity cake maker and yummy scones baked by our committee member (and OT) Barbara Strevens. Many thanks to LOROS and all the branch members (including Barbara's boys!) who came along to help and to enjoy the goodies as well ! 

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BARDI ORCHESTRA CONCERT COLLECTION

We are most grateful to the Bardi Symphony Orchestra for offering us the opportunity of a bucket collection at their "Espana!" concert at the De Montfort Hall on Sunday 12 June 2016. Thanks to the generosity of the concert goers, we raised the magnificent sum of £310 for branch funds. We also thoroughly enjoyed the concert by the Bardi Orchestra with the internationally acclaimed guitar soloist Craig Ogden. Many thanks from the "bucketeers" for a great Sunday afternoon! 

SUPER DONATION FROM COLLEAGUES AT ALBERT BROWNE, LEICESTER 

We offer our grateful thanks to the staff and management of ALBERT BROWNE LTD. of Thurmaston, Leicester. They have been collecting money for the branch over the last 2 years in very varied and enterprising ways. These included funds from the lottery bonus ball, Christmas jumper day donations , fines for staff forgetting their company security passes, the pub crawl kitty money etc. The total raised was a staggering £930.00 which is a tremendous effort from all the staff and we thank everyone involved. The picture below shows Doreen Daniel presenting the cash ( in a specially decorated tub!!) to MNDA Leics. and Rutland Branch members Paul Wilcock and Janet McMillan at the Albert Browne staff canteen.

 

  

 

 

INFORMATION ABOUT HOLIDAY ACCOMMODATION

We have compiled a list of self-catering holiday cottages and other accommodation which have been used by people living with MND. More information and contact details can be found on the Information & Support / Useful Links page of this website. If you find a place which meets your needs and would like to share the information with others, please let us know and we would be happy to to add it to the list.   

 

NEW DEVELOPMENTS IN LOCAL CARE FUNDED BY MNDA

Working in partnership with LOROS has brought many benefits and was crucial to the development of the multi-disciplinary team approach to supporting people with MND in Leicestershire and Rutland. We are, therefore,  delighted to announce our latest joint initiative to further develop the local team based at LOROS. This project has enabled a full time additional nurse to be employed to undertake some of the more routine tasks carried out by the specialist nurses and has also provided a secondment opportunity for another nurse to work two days a week to give further support to the team. The aim of the project is to strengthen and shape the MND care provision for the future and is an excellent example of how our partnership with LOROS continues to improve local support for people with MND and their families.

No additional funding for the project was available from the area health budget so with support from the team at LOROS, the proposal was submitted to the care service team at  MNDA  with a request for financial support. We were most grateful that a very generous grant was allocated from MNDA’s care budget but to ensure its successful implementation, the Leicestershire and Rutland Branch would need to contribute at least £16,000 over two years towards the cost of the project. It seemed like a huge sum to find at the time but recognising the importance of this project, the branch committee pledged the necessary funding  so the project could start without delay.

We are, therefore, pleased to report that, thanks to the generosity of our many fundraisers and donors, including an exceptional grant from the Treble One Trust, the branch’s contribution to the project now amounts to nearly £20,000! As a result, we are delighted to be able to introduce Assistant Practitioner Louise Clay and Registered Nurse Omina Yasmin who joined the MND team in the summer and are now making an important contribution to the care and support of  local people with MND.

 Below - the team pictured at LOROS. From left to right - MND specialist nurses Jane Glover, Louise Clay, Omina Yasmin and Jo Joyce.

SUPERMARKET FUNDRAISERS

Thanks to the generosity of Tesco customers (and our willing team of local volunteers!) we raised nearly £800 at our recent collection days at the Tesco supermarkets in Loughborough.

Many thanks to everyone at the ASDA superstores at Hinckley  and Fosse Park who both adopted us as one of their local charities. We were delighted to welcome Marie from the Hinckley store to our 2016 AGM when she presented us with a cheque for £50 and we have just received a cheque for £200 from the Fosse Park Asda!  

 

FESTIVE GET- TOGETHER AT PALMERS' GARDEN CENTRE

What a great Christmas party we had at Palmers Garden Centre! Over 70 branch members and friends enjoyed our annual festive gathering and tucked into a splendid hot supper prepared by the wonderful staff at the cafe. We were delighted to welcome a very special guest and MNDA supporter, South Leicestershire MP Alberto Costa, who took the time to chat to many guests including a couple of his constituents who are living with MND. ( See middle image below) We were also pleased to welcome a representative from the Abbey Lane, Leicester branch of ASDA who presented us with a cheque following their recent collection for MNDA. Once again, we are most grateful to everyone at Palmers for their warm welcome and for helping to make this such an enjoyable event for us all. 

 

 HUNCOTE KNIGHTS'  "SOCCERTHON" EXCEEDS THEIR GOAL!

On 26th September, the Huncote Tuesday Knights held a “Soccerthon”  - an exhausting 24 hour 5-a-side football match to raise funds for the Leicestershire branch of MNDA and the Leicester Hospitals Charity Funds (Oncology). Initially hoping to raise around £1,000 for the two charities, the footballers’ amazing efforts far exceeded their original target as their generous supporters donated a grand total of over £11,000.

Two of the Huncote Tuesday Knights, Pete and Tony, explained - “We are a group of friends who have been playing 5-a-side football at 'The Pavilion' in Huncote on a Tuesday night since July 1992. However for one weekend only, current and former players dusted off the cobwebs to support two of our long-standing members who have been diagnosed with very serious medical conditions. Just over two years ago Tony Edwards (59) was diagnosed with Motor Neurone Disease. Eighty people in Leicestershire alone suffer from MND, so Tony is hoping that we can raise as much as possible for the Leicestershire branch of the MNDA. After an initial tumour was removed, Pete Carrigan (54) has been diagnosed with a very rare acinic cell cancer. There are only 5 known cases of this cancer worldwide so Pete would like to raise as much money as possible for the Leicester Hospitals Charity Funds."

Paul and Ruth Johnson attended their presentation evening at the Pavilion in December when they were thrilled to receive a cheque on behalf of the branch for the magnificent sum of £5,550. We are most grateful to the Huncote Tuesday Knights and everyone who contributed to this hugely successful event.

 

 THRUSSINGTON MUSICAL GARDEN PARTY  RAISES £4,000 FOR BRANCH FUNDS

On a glorious sunny evening in July neighbours and friends in Thrussington gathered in the beautiful garden at The Hollies for a "Glyndebourne style" musical garden party to raise funds for MNDA. With gazebos galore, fairy lights and delicious food, a truly gala evening of live classical music was held at the home of Jayne Montgomery Stuart with the help of many friends who helped organise the event, providing food, erecting stages and wiring up complex sound systems to create a magical evening for everyone who attended. Alison Smith and Janet McMillan were later invited to a most enjoyable little party at Jayne's house where they were presented with a huge cheque for £4000 for branch funds and had the opportunity to personally thank some of the many people who had helped make the garden party such a huge success.   

 

JOHN LEWIS DONATION

Thanks to all those who voted for us at the John Lewis cafe in Leicester, we have received the magnificent sum of £1,410.00 from  the store's community charity fund.  

 

SPOOKY FUNDRAISING 

This scary gang raised £435.00 for the Leicestershire and Rutland Branch at their Halloween party.

Many thanks to Venetia Hennighan and friends for their spooktastic donation!  

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 BRANCH STALL AT LEICESTER PRIDE

Thank you to Barratt Homes for providing a stall for us at the recent Leicester Pride event at Victoria Park, Leicester! Pictured below at our stall are Ruth and Glenn Johnson with guests, including Mayor of Leicester, Sir Peter Soulsby. 

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WHITWICK PUB RAISES £860  

Many thanks to everyone who supported the recent fundraising events in aid of MNDA at the Hare and Hounds public house in Whitwick. They'd hoped to support Tom Dumbleton's bid to run the 2015 London Marathon and raise money in memory of his Grandad Ron but, sadly he didn't get a place on the run this year. Nonetheless, Tom was able to present a cheque for the splendid sum of £860 to branch chair, Janet McMillan - see picture below. Our special thanks go to Leslie and Anthony at the pub for supporting Tom's bid and for all their hard work in organising the fundraising events.

 

A BIG THANKYOU TO SAINSBURY'S AT LOUGHBOROUGH 

After a year of fundraising efforts in the store - and beyond - the wonderful team at Loughborough Sainsbury's recently presented the branch with a very large cheque for the magnificent sum of £7811.05  as well as £200 gift tokens to enable the branch to buy an additional i-Pad for use as a communciation aid. This was in addition to the money shoppers donated at our bucket collections held over the last few months which added another£928.00 to the sum raised as a result of the store adopting us as their community charity for 2014-15.

We are enormously grateful to Monica Patel who organised their fundraising events and for the enthusiastic support of her colleagues. Special thanks must go to Monica, Hayley, Karl and all the team from the store who took part in MNDA's 3 Peaks Challenge at the end of June as part of their fundraising activities on our behalf. 

 

CAKES GALORE AT RUTLAND GARDEN PARTY 

Despite being  held on a cool and cloudy June afternoon, everyone enjoyed the wonderful afternon tea and cakes at Tricia Lawrence's second summer garden party for MNDA which raised over £1000 for branch funds. Our grateful thanks to Tricia and all her supporters.  

 

SPRING FLING SUCCESS

Many thanks to everyone who supported the Spring Fling fundraising Indian meal in April which raised the amazing sum of £2,056 for branch funds. We’re really grateful to Jo Joyce and Jane Glover, our wonderful MND Specialist Nurses, who organised the whole event and, of course, to the Chef and Spice Restaurant, Leicester for providing such great food and helping us raise so much money.   

 

ADMIRAL NELSON FUNDRAISER

David Heath and the Admiral Nelson pub in Market Harborough raised £200 for MNDA and £200 for LOROS at their recent fundraising events. Thank you to everyone who helped to make it such a success. 

   

LEICESTERSHIRE AND RUTLAND BRANCH AGM - 14 APRIL 2015

In April we held our 29th Branch AGM when we were pleased to welcome branch members and several colleagues from LOROS and MNDA’s national office.  We were sad that two of our long standing committee members, Lee Parkin and Angela Parkin were stepping down after several years’ outstanding service to the branch.  Many people will know Angela who, as well as being branch treasurer, could be found serving teas and running raffles at branch meetings.  Her son Lee has a wonderful knack of attracting publicity and has helped us raise thousands of pounds over the last few years. It is also thanks to him that we were given this website design and set-up free of charge.

We were very pleased that Susan Payne was formally elected to the Branch committee at the AGM and we welcomed her to her first meeting in May.  Susan has been enthusiastically supporting us for some time and has helped with various events including bucket collections at Sainsbury’s and the Odeon cinema in Loughborough.  We have also welcomed other new volunteers who have joined us as association visitors or as friends of the branch over the last few months.

After the formal  meeting,  Karen Pearce, (MNDA’s Director of Care)  Jo Joyce (MND Specialist Nurse), Rachel Boothman (MNDA RCDA) , Dr Luke Feathers (Palliative Care Consultant) and  Benny Rossi  (Branch Committee ) gave a  very  informative  presentation about how the innovative  partnership between MNDA  and  the  health and social care team based at LOROS  co-ordinates and delivers  support to people with MND in our area. 

 

TIME OF TRIBUTE AND CELEBRATION OF LIFE 2015 

On 14 March in conjunction with LOROS, we held our annual service of tribute and celebration for families who had lost a loved one from MND during the last year. Over forty people attended the service which included readings from branch members and LOROS staff as well as music and time for remembrance and reflection. The branch is most grateful for all the support from colleagues at LOROS including the Chaplain, clinical staff and the counselling and bereavement support team.    

 

 TRIBUTE EVENING ROCKED LUTTERWORTH

 The tribute evening with CLIFF AS IF and the UPBEATLES in Lutterworth on February 20th raised £2100 which was split with Days of Smiles, Sherricliffe and MNDA. Many thanks to everyone involved! 

 

HONOURING ISOBEL

As many of you will be aware, Isobel Jenkins has been a stalwart of the branch for nearly 20 years. In that time she has supported countless people with MND and their families in her role as Association Visitor. Last year she decided that it was time for her to retire from that role although she still plays an active part in the branch as a committee member. For many years she was our branch AV coordinator and during that time was instrumental in helping establish Leicestershire’s award winning multi-disciplinary approach to providing support for people with MND. She was also the branch chair for several years and even found time to be a member of the MNDA Board of Trustees.

We felt that Isobel’s special contribution to MNDA, the branch and her work in the community should be properly recognised so we took the opportunity to make a special presentation to her at the Christmas social evening at Palmer's in December to thank her for all that she has done in her various roles in the Association. Specially invited guests included Jane Connell who, as our MNDA regional care adviser for many years, had worked closely with Isobel. As well as gifts from the branch committee and colleagues at LOROS, Isobel was presented with a long service certificate and a vase from Neil Penson, Volunteer Development Coordinator, on behalf of the MND Association.

Isobel is pictured below with Neil, Rachel Boothman (MNDA Regional Care Development Adviser) and branch chair, Janet McMillan.     

 

 

LOUGHBOROUGH ODEON CINEMA BUCKET COLLECTION

The Leicestershire and Rutland branch of the MND Association is most grateful to the management and staff of the Odeon Cinema in Loughborough for allowing branch volunteers to hold bucket collections during the cinema’s recent screenings of The Theory of Everything, the award winning film telling the story of Stephen Hawking, the astrophysicist who is living with MND.

Thanks to the generosity of local filmgoers our collections at the Loughborough Odeon raised £501.74 for our local branch as well as helping us spread awareness of motor neurone disease (MND). This money has enabled the branch to buy three additional I-pads which we use to provide a vital means of communication for those people with MND who, like Professor Hawking, can no longer speak. We're also really grateful to all those wonderful volunteers who responded to Yvonne Minifie's call for help in taking a turn with the buckets at the cinema!

The MND Association and people living with and affected by MND were involved with the making of the film and helped the lead actors research their roles. We are thrilled, therefore, that Eddie Redmayne has now won a Golden Globe Award for his extraordinary portrayal of Stephen Hawking. Do go and see it at your local cinema!

  


 

  EMILY'S SKYDIVE FOR MNDA

Well done to Emily Steele ( in full flight below!!) who bravely did a tandem sky-dive on 9th August in memory of her dad, Mark Steele who died of MND in 2011. Emily says her dad was  a wonderful person who was striving to do things for other people even if it was difficult for him. This  inspired her to take on this challenge, which she admitted she was very nervous about, to raise funds for MNDA. 

Thanks to Emily's courageous efforts ( and her many generous supporters!) she smashed her target of £1000! She's still fundraising so if you'd like to make a donation you can find her justgiving page at www.justgiving.com/EmilySteele.

 Emily in full flight! 

 

 

 

 


 

MUD, MUD, GLORIOUS MUD !!!!!!!!!!!

 

 

On Saturday 15th February 2014 in freezing cold and windy conditions, Jenny Smith (in the red hat) and two friends (Jon and Cath) took part in The Avalanche Race which was held in Sibbertoft near Market Harborough. Despite the extreme weather conditions, they say they had a brilliant time and thoroughly enjoyed the event. But what made it all worthwhile is the amount of money they raised between them...... £600!! The photograph shows the three of them waist deep in a lake during the latter part of the race - and they are still smiling! Well done to them all for an amazing effort on behalf of MNDA.

  

LOCAL TSB BRANCHES RAISING FUNDS FOR MNDA

14 Midlands region branches of the TSB bank adopted the Leicestershire and Rutland Branch of MNDA as their charity for 2014. Their first event was a cake bake and sale on Valentine's Day at Leicester Horsefair Street Branch and they are planning all sorts of activities such as cycle rides and curry evenings over the coming months. Harinder Sahota, Area Trading Director for TSB said " We are so pleased and happy to support this worthwhile cause".

SCHOOL "ONESY DAY" RAISES £415

 

Congratulations and many thanks to everyone at St Bartholomew's  C. of E. Primary School at Quorn for this magnificent donation. Very special thanks must go to Amelia Lane who had the brilliant idea of holding a school "Onesy Day" and to everyone who supported it by paying £1 to wear their onesies instead of school uniform on the designated day. The photo above shows Amelia presenting the cheque to MND Specialist Nurse Jo Joyce at the school. It's amazing what people do to raise money for MNDA!  

 FUNDRAISING TRIBUTE NIGHT  

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    TRIBUTE TO THE LEGENDS

 

  This event held on 8th November in Lutterworth raised £1800 for the branch.

   We had tribute acts, The UpBeatles, James Aaron King as Elvis, and Scott Dee as Engelbert Humperdink

  The evening was a complete sell-out – people were singing, waving their scarves and dancing. 

  The atmosphere was electric’.

  Thank you to all who supported this event – I know a good time was had by all

   Ruth Johnson,  Vice-Chair

 

 

 

LEICESTER LADIES CIRCLE PRESENTS CHEQUE FOR £500

 We were delighted to meet several members of Leicester Ladies Circle at the Chef and Spice curry evening who took the opportunity to present us with a splendid cheque for £500.They, too had held a very successful fundraising curry evening in aid of the Leicester and Rutland Branch.  We are most grateful to them for their wonderful support.  

 

 

 SAMANTHA MAKES THE NEWS!

Congratulations to Samantha Macdonald who featured in an article about MND published in the Leicester Mercury on 22 June. Sam is one of our branch association visitors and tells the story of her brother's illness and what she is doing to support MNDA. Log onto the Leicester Mercury website and enter mnda in the search box to read the article and see a lovely photo of Sam!

 

 ROTHLEY PARK GOLF CLUB RAISES £19,000 !!

A huge thank you to members of Rothley Park Golf Club who raised the magnificent sum of £19,166.76 for MNDA during 2011-2012.  We are most grateful to the 2011 Captains Keith McKeown and Lindsay Jelley who both chose MNDA as their Captain's charity during their year of office.

They are pictured below presenting the giant cheque to Branch Chairman Janet McMillan.

                                                   

 

PROCON DINNER RAISES £7,000 !

A huge thankyou to representatives from the local property and construction industry who raised £7,000 from their table collection and raffle at the 9th ProCon Awards Dinner at the King Power Stadium, Leicester in Novemberm 2011.   Pictured below are  the guest speaker, GP and Broadcaster Dr. Phil Hammond and Branch Chairman Janet McMillan presenting a raffle prize to a lucky winner.

 

 

MAY 2011 - 25TH ANNIVERSARY TEA FOR MNDA LEICESTERSHIRE AND RUTLAND BRANCH

 

 

In May 2011 we marked our 25th Anniversary by thanking some of the people who have supported the Branch during the last 25 years. From those early days in 1986, the Branch has attracted the loyal support of many local people and organisations. Through their dedication and commitment the Branch has gone from strength to strength. Thanks to the amazing fundraising efforts of many local groups and individuals, over £ 500,000 has been raised in the last 25 years. During that time, the quality of welfare support provided by the Branch's team of trained volunteer visitors has not only earned the respect of those working within the local health and social care professions but has also been recognised nationally as an example of good practice.

We were thrilled when long standing MNDA supporters, Celia and Richard Mackay, the owners of Kilworth House Hotel, offered to provide a tea party in the magnificent surroundings of the hotel's Orangery. Thanks to their generosity, we were able to acknowledge the hard work and commitment of some of the people who have contributed to the success of the Branch over the years. We were delighted that MNDA's Chief Executive, Dr Kirstine Knox was able to join us along with founder members, longstanding supporters, fundraisers, MNDA staff past and present, friends from LOROS and representatives of the medical and social care professions. To mark the occasion, Kirstine presented the Branch with a very special rose. It is one of the newly launched MNDA roses, aptly named "Thumbs Up," which will be planted in the LOROS garden to commemorate our 25th anniversary. The rose will soon be on sale to raise funds for the Association so we will let you know when it is available.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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